The body experiences stiffness person syndrome, which results in uncontrollable spasms.The disorder cannot be cured, however there are things that can be done to delay its progression.
Stiff Person Syndrome (SPS), which causes her muscles to stiffen up compulsively, has been identified as Celine Dion’s condition.
Patients eventually become ‘human statues’ as the illness gradually locks their bodies into stiff positions, rendering them unable to move or speak.
While there is no known treatment to stop the growth of SPS, Celine says she is doing everything in her power to minimize symptoms.
In an emotional Instagram message on Thursday, the 54-year-old singer apologized to her followers and said she had to postpone her European tour due to it.
’Hello everyone, I apologize for taking so long to get in touch with you,’ she wrote. I miss you all so much and am eager to meet you all in person on stage.
As you are aware, I have always been honest, and while I wasn’t yet ready to say anything, I am now.
It’s been incredibly difficult for me to face my struggles and to talk about everything that I’ve been through since I’ve been struggling with health issues for a very long time.
I recently learned that I had the stiff person syndrome, a highly rare neurological condition that affects 1 in a million people.
Although we are still studying about this uncommon ailment, we now know that this is the reason for all the spasms I have been experiencing.
Celine went on to describe how the ailment has affected her, saying: ‘Unfortunately, these spasms influence every area of my daily life,
sometimes making it difficult for me to walk and preventing me from using my vocal chords to sing the way I used to.’
I hate to break it to you now, but I won’t be prepared to resume my European tour in February because of this.
My wonderful children are supporting me and helping me, and I have a great team of doctors working with me to get healthy.
I have to say that it’s been difficult, but I work very hard with my sports medicine therapist every day to regain my strength and my ability to perform.
Singing is all I know; it’s what I’ve done my entire life and what I love doing the most.I really really miss you. I miss seeing all of you playing for you on stage.
I always give my best when I perform, but due to my health, I can give it to you right now. I have to focus on my health right now if I want to get in touch with you again, and I think I’m headed in the right direction.
I’m concentrating on this and doing everything I can to recover. I want to express my gratitude for your kind words, support, and well wishes on my social media.
I greatly value this.Take care of one another. Good luck. I adore you all so much and sincerely want to see you soon.
When she postponed the North American dates of her Courage world tour from March 9 to April 22, Celine gave her first indication that she was having health problems.
Three months prior, she had to postpone the beginning of her Las Vegas comeback residency due to the same health problem.Celine’s wildly popular residency in Las Vegas have earned her the title ‘Queen Of Las Vegas.’
She was persuaded to return to Sin City in 2019 after ending her illustrious Caesars Palace engagement to perform at the brand-new Resorts World on the Strip.
Celine recently underwent treatment for severe and chronic muscle spasms that are keeping her from performing, and her recuperation is taking longer than she had hoped.
‘Her medical staff continues to assess and manage the issue,’ it says.I was really expecting that I’d be good to go by now,
but I guess I just have to be more patient and adhere to the routine that my doctors are recommending, said Celine.
We have to make decisions now that will have an impact on the plans two months from now since our concerts require a lot of planning and preparation.
I can’t wait to return to the stage when I’m fully recovered and when this pandemic is finally over for everyone.
Meanwhile, I’ve been really moved by everyone’s supportive messages that I’ve received on social media. It means the world to me that I can sense your love and support.The accusation that Celine was “too thin” in 2019 caused anxiety among her supporters.
The Canadian singer-songwriter claimed to have ‘always been really slim’in an interview with Entertainment Tonight, asking, ‘Is there anything wrong with my body?’
’When you go back, when I was twelve, my face was rounder because you have more fat and you’re younger,’ she explained. I have, however, always been pretty skinny.
After losing her spouse Rene Angelil at the age of 73 in 2016, the SPS diagnosis is the most recent tragedy to face Celine.
Rene-Charles, age 21, and the twins Nelson and Eddy, ages 12, are the three sons Celine had with her deceased husband.
When she first met Rene, a 38-year-old singer, he was in Canada when she was just 12-years-old. He was appointed her boss.
He reportedly mortgaged his home in order to finance her 1981 debut album La Voix du beau Dieu, demonstrating his commitment to supporting her career.
Rene and Celine started dating in 1987, when she was only 19 and he was 45, and they became engaged the following year.
But it wasn’t until 1993 that she made their relationship public, inserting a statement about it into the sleeve notes of her album The Colour Of My Love.
Their nuptials took place in Montreal’s Notre-Dame Basilica, which also served as the location for Rene’s funeral and the christening of their firstborn son Rene-Charles.
In January 2016, Rene, who had terminal throat cancer, passed away at the age of 73 after having a heart attack.Daniel, Celine’s brother, passed away from throat cancer two days later.
A successful track with the same name in francophone markets was included on Celine’s tribute album to him, Encore un soir, which was released in French that August.