A mother had just given birth to her child when the room went silent, and she was unsure of what was going on.
Her fear of uttering the first words to break the silence was palpable. Eliza Jamkochian Bahneman, age 36, and her husband Erik,
age 41, were overjoyed to learn they were expecting a child in 2018 after 9 months of attempting to conceive.
Bahneman’s joy knew no bounds, and she told her friends, sister, and sister-in-law the news of her pregnancy.
It seemed like they were all pregnant at the same time, or at least that their due dates were somewhat close together.
The expecting mother was counting down the days till the arrival of her miraculous child.
The girl baby did,
of course, make the decision to enter the world outside her mother’s womb, albeit a full month earlier than doctors had predicted.
Isabella, or ‘Bella,’ was born on the 31st of October, 2018. After 12 hours of labor, this baby weighed in at 5 and a half pounds.
What was supposed to be a joyous occasion suddenly lost its luster. Bahneman became unnerved by
the eerie quiet that fell over the gathering as rumors spread in whispers. She reflected on the situation and said:
How come no one is congratulating me? So what is going on to make my spouse so frightened and unsure of himself? My mum won’t look at me; why is that?
After extensive testing in the neonatal intensive care unit, doctors determined that Bella had the extremely rare genetic disease Treacher Collins.
As a result, the face bones don’t form correctly.
It’s because of this that Isabella had problems from birth, such deafness and a narrow airway.
This marked the beginning of a long and difficult road full with hospitalizations, operations, and last-minute medical problems.
Bella had to take part in a wide variety of therapies. Because of her hearing impairment, she attended music therapy, speech therapy, and occupational therapy.
This mother is committed to spreading information and knowledge about Treacher Collins syndrome. Bahneman hopes that his story would encourage people
to treat those who suffer with this illness with compassion. After all, this is the proper response to meeting someone so extraordinary in their own right.